Alexandria Library

A curated collection of awesome articles

Here are some ressources related to Privacy, Health data, Patient consent. Hoping you will find learning material, alternative tools or just some interesting stuff.

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Articles

US could soon approve MDMA therapy
See discussion (391 comments, 423 points) - Archive
Why did Phreesia share my medical data after I opted out?
See discussion (79 comments, 195 points) - Archive
Telehealth startup Cerebral shared millions of patients’ data with advertisers
See discussion (149 comments, 329 points) - Archive
FTC bars GoodRx from sharing consumers’ sensitive health info for advertising
See discussion (88 comments, 248 points) - Archive
Websites selling abortion pills are sharing sensitive data with Google
See discussion (99 comments, 157 points) - Archive
UK government set to extract hospital data to Palantir without patient consent
See discussion (17 comments, 103 points) - Archive
Patients can now access all their health records digitally
See discussion (118 comments, 271 points) - Archive
Senator Warren proposes sweeping ban on location and health data sales
See discussion (80 comments, 233 points) - Archive
Covid testing firm ‘selling swabs carrying customers’ DNA’ to third parties
See discussion (201 comments, 381 points) - Archive
England's Data Guardian warns of plans to grant police access to patient data
See discussion (24 comments, 85 points) - Archive
Hospitals are selling troves of medical data
See discussion (120 comments, 247 points) - Archive
English medical records are about to be given away. As GPs, we’re fighting back
See discussion (79 comments, 205 points) - Archive
FTC Settlement with Fertility-Tracking App for Facebook/Google SDK Data Sharing
See discussion (74 comments, 159 points) - Archive
Palantir lands £23m NHS data deal
See discussion (55 comments, 90 points) - Archive
LifeLabs goes to court to block privacy watchdogs from probing 2019 data breach
See discussion (29 comments, 105 points) - Archive
Britain gave Palantir access to sensitive COVID-19 patient records in £1 deal
See discussion (74 comments, 246 points) - Archive
Your New Medical Credit Score Could Deny You Care
See discussion (387 comments, 337 points) - Archive
Mental health websites don't have to sell user data but most still do
See discussion (0 comments, 112 points) - Archive
Health-Records Company Pushed Opioids to Doctors in Secret Deal
See discussion (1 comments, 172 points) - Archive
Google's harvest of medical data includes names and full details of millions
See discussion (115 comments, 258 points) - Archive
Google whistleblower: the medical data of millions of Americans is at risk
See discussion (77 comments, 212 points) - Archive
Google's ‘Project Nightingale’ Gathers Personal Health Data on Millions
See discussion (266 comments, 399 points) - Archive
Millions of Americans’ Medical Images and Data Are Available on the Internet
See discussion (33 comments, 86 points) - Archive
Mental-health information 'sold to advertisers'
See discussion (140 comments, 250 points) - Archive
Only 13% of UK adults trust big tech firms with handling anonymized NHS data
See discussion (49 comments, 89 points) - Archive
Medical records on the blockchain – the history of a bad idea
See discussion (148 comments, 178 points) - Archive
How my sexual health searches ended up in the hands of big tech companies
See discussion (90 comments, 199 points) - Archive
Health Insurers Are Vacuuming Up Details About Customers
See discussion (253 comments, 193 points) - Archive
Australia's new e-health platform crashes as people rush to opt-out
See discussion (109 comments, 120 points) - Archive
The simple process of re-identifying patients in public health records
See discussion (12 comments, 87 points) - Archive
Aetna accidentally exposed customer HIV statuses in clear envelope windows
See discussion (121 comments, 168 points) - Archive
Looking Up Symptoms Online? These Companies Are Tracking You
See discussion (102 comments, 185 points) - Archive
HealthCare.gov Sends Personal Data to Dozens of Tracking Websites
See discussion (94 comments, 346 points) - Archive
Dear Google, am I pregnant?
See discussion (56 comments, 131 points) - Archive
NHS England patient data 'uploaded to Google servers', Tory MP says
See discussion (176 comments, 188 points) - Archive
NHS patient data to be made available for sale to drug and insurance firms
See discussion (61 comments, 130 points) - Archive
23andMe Is Terrifying, But Not for the Reasons the FDA Thinks
See discussion (109 comments, 115 points) - Archive
My Doctor's Office Asked me to Lie (2011)
See discussion (124 comments, 194 points) - Archive
My Doctor's Office Asked Me To Lie
See discussion (230 comments, 524 points) - Archive
87% of the U.S. Population are uniquely identified by {DOB, gender, zip}
See discussion (95 comments, 281 points) - Archive
Last chance: let the FDA know why you want direct access to your own genome
See discussion (76 comments, 123 points) - Archive
Pharmacies share medical data with police without a warrant, inquiry finds
See discussion (45 comments, 181 points) - Archive
Find out who owns a nursing home with our Nursing Home Inspect tool
See discussion (85 comments, 308 points) - Archive
Every major pharmacy chain giving government warrantless medical record access
See discussion (230 comments, 343 points) - Archive
Patreon: Blocking platforms from sharing user video data is unconstitutional
See discussion (41 comments, 82 points) - Archive
Woman Got Cremation Ads in the Mail After Getting Chemotherapy
See discussion (91 comments, 125 points) - Archive
FTC Obtains $195M Judgment and Ban on Simple Health for Sham Insurance Offering
See discussion (32 comments, 134 points) - Archive
96% of US hospital websites share visitor info with Meta, Google, data brokers
See discussion (62 comments, 223 points) - Archive